Welcome to Take On PH1, a site dedicated to educating the primary hyperoxaluria type 1 (PH1) community.
Although rare, PH1 can affect people of all ages. If it does, we have resources for you.
Kidney stones are common in people with primary hyperoxaluria type 1 (PH1)
The most common symptom of PH1 is kidney stones that form due to oxalate overproduction in the liver.
The impact of PH1 goes beyond stones
This overproduction of oxalate can damage your kidneys, affecting their ability to filter waste from your blood.
PH1 tends to get worse over time
Because oxalate is constantly overproduced, it may continuously be doing damage, even when you don’t realize it.
Your doctor will work with you to develop a management plan to try to reduce symptoms and try to prevent the disease from getting worse. With personalized management, you may find ways to be active and engaged.Managing PH1